Sunday, December 2, 2007

No place like home

Bruno celebrating early + Gianni striking a pose

We got to come home! The doctor's at UCSF discharged Gianni late Thursday night for a few days at home; we go back to UCSF on Tuesday morning to have surgery to place the semi-permanent port that will be used to administer her treatment.

Tony and I met with the oncologists last Wednesday, I think he may have been a bit more shocked by the intensity of the prognosis and treatment than I was - we have a long road ahead. After the meeting, we talked with some friends and colleagues and have decided to seek another opinion regarding her treatment. We are resigned to the fact that chemotherapy is the appropriate course, we are just looking for another data point. We meet with Doctor Fisher of Lucile Packard Children's Hospital (Stanford University) this Thursday. This will delay Gianni's chemo for a few days, but both UCSF and Stanford have assured us that this does not introduce any risk.

Time at home has been indescribable; just the sounds of our full house are music. I even had to discipline Bruno and Gianni last night for "acting up" at bedtime. Brings tears of joy!

Today is Gianni's birthday, she is 3 years old. We celebrated last night with Grandma and Grandpa Walker and GPs Austin (via phone) - between you and me, Gianni is about the only one who can keep up with those rascals! We will have a low-key "Princess-Style" shindig with a few of her friends at the house tomorrow.

Her coordination and post-surgery neurological "quirks" continue to improve and are most likely only noticeable to me and Tony. I can barely keep up with her (per usual).

I continue to be touched by all your prayers and good wishes, we can't thank you enough.

She continues to run the show.