As promised, the folks at LPCH released us from the hospital late Sunday night (12/16). We picked up Bruno from Auntie Jen and Uncle Timmy's and had a late supper of Tony's homemade Chicken Noodle Soup. [Not exactly what the DOCTOR ordered (no fresh vegetables or big chunks of chicken on that list), he sent us home with a whole pharmacy, including a daily S-H-O-T (!)]
She seems to thrive at home, so we are determined to learn to do as much as we can w.r.t. her care so that we can limit the trips to Stanford. This means caring for her port, weekly dressing changes, blood draws, and daily shots. Who knew Tony and I possessed these capabilities?
She is scheduled for weekly clinic visits (some with chemo some without), and will start the whole 28-day cycle over again after the new year (including the initial 3-4 days in the hospital). We will repeat this cycle at least five more times, and hopefully (new paradigm again), seven.
She is sleeping well at night and offering the appropriate amount of resistance to the daily meds. Her appetite is not quite back, but Tony is working on that.
The GREAT news is: 2nd lumbar puncture came back negative (means no spreading to the spine).
We keep on keeping on, we appreciate all your thoughts, prayers, and good wishes.
She continues to run the show; her favorite meal seems to consist of "Princess Waffles", which translates to "frozen waffles". Is that even healthy?
