Gianni eating pizza, watching DoraMonday (11/26) was a big day; the doctor's removed Gianni's "brain drain" (external ventricular drain - EVD) and shortly after we were joyfully kicked out of the intensive care unit. We now have a room on the 7th floor (oncology patients). Gianni has a bit more privacy (checks every 6 hours vs. every hour) and substantially more freedom to move around.
Monday night we also received the results from the pathology report. Gianni is fighting a tumor/cancer named Primary Supratentorial Primitive Neuroectodermal Tumor (sPNT). In our new paradigm, this is good news - unlike some of the other types of cancer she could have been facing, there are treatments (both standard and experimental) available for children with sPNT.
Tony and I meet with the oncologists this afternoon (Wed, 11/28) to lay out her treatment plan. Most likely the treatment will consist of intensive chemotherapy (possibly stem cell rescue). Radiation treatments are not desirable in children, but may become an option later.
The tentative plan includes a few days at home between now and next Monday. Next Monday she will have surgery to implant a semi-permanent IV port (for the chemo) and begin her treatments.
She is doing so well, yesterday we hit the Pediatric Gym where she was able to walk around and play a bit. We painted, played with a giant doll house, and kid's kitchen.
She continues to run the show.
