Gianni is our pants on fire 6 yr old. In Nov 07 she was diagnosed with a supratentorial primitive neuroectodermal tumor (sPNET), a highly malignant, rare brain tumor. Dr. Nalin Gupta (UCSF) performed surgery to completely remove the tumor. She completed 9 mos of high dose chemotherapy with Dr. Paul Fisher/Trish Murphy, NP at Stanford's LPCH (Palo Alto, CA) in Aug 08. Today (19 Nov 2011) she is 1,464 days (4 yrs, 3 days) NED!!! [who's counting...?] Thank you for your positive thoughts!
Thursday, February 14, 2008
Cycle 3, Day 7 [St. Valentines Day]
Happy Valentines Day!
Today is the day Gianni goes to clinic to have her blood work and chemo bump (maybe a transfusion?). Her counts are dropping sooner than last week so we are anticipating a neutropenic weekend or so.
We are not stressing so much over bodily functions this time (well, at least as of last night!) . . . I won't go into details but we found a mix that seems to jump start the plumbing! She is doing well, and eating okay. Dad is taking very good care of her. Tony even let Bruno stay home a day or two so that she would have someone to fight with, I mean play with!
We appreciate you all so much! More to come.