Gianni is our pants on fire 6 yr old. In Nov 07 she was diagnosed with a supratentorial primitive neuroectodermal tumor (sPNET), a highly malignant, rare brain tumor. Dr. Nalin Gupta (UCSF) performed surgery to completely remove the tumor. She completed 9 mos of high dose chemotherapy with Dr. Paul Fisher/Trish Murphy, NP at Stanford's LPCH (Palo Alto, CA) in Aug 08. Today (19 Nov 2011) she is 1,464 days (4 yrs, 3 days) NED!!! [who's counting...?] Thank you for your positive thoughts!
Friday, February 8, 2008
Cycle 3, Day 2/3
Just a quick entry - Gianni is doing well. We did have to resort to the enema, but that works and I think she feels better. A bit of nausea and associated vomiting but all in all, good spirits and we are more than 1/2 way done with this admit. She had a great dinner tonight - I ran down to the cafeteria and got all her favorites; white rice with "bug juice" (soy sauce), french fries with catchup, and cheese. Top it off with apple juice and you've got the dinner of champions.
We had a fun visit with Dr. Nordt (Ms. Alison to Gianni) and are looking forward to spending time with G'Ma G'Pa Walker and Bruno tomorrow. She is sleeping well and misses her daddy on his night off.
More later!