Gianni is our pants on fire 6 yr old. In Nov 07 she was diagnosed with a supratentorial primitive neuroectodermal tumor (sPNET), a highly malignant, rare brain tumor. Dr. Nalin Gupta (UCSF) performed surgery to completely remove the tumor. She completed 9 mos of high dose chemotherapy with Dr. Paul Fisher/Trish Murphy, NP at Stanford's LPCH (Palo Alto, CA) in Aug 08. Today (19 Nov 2011) she is 1,464 days (4 yrs, 3 days) NED!!! [who's counting...?] Thank you for your positive thoughts!
Saturday, June 7, 2008
Still more Cycle 06
We are home and enjoying a beautiful and quiet weekend. Tony left this morning to collect Bruno circuitously via the cabin . . . hmmm. Turns out that is okay, because Bruno did not want to miss out on Uncle David and Aunt Patricia's swim party (with cake!) anyway. So we'll have the whole gang home again tomorrow.
Gianni and I laid low today, some lounging around, some shopping, and a stroll along the Bay pretty much sum up the excitement. The vanco infusions are going just fine, seems that all that practice we got with the Broviac is paying off. The plan is to continue the infusions through Wednesday (every 8 hours) and then not go back to clinic until Friday. This will be the longest stretch she's had in quite a while.
The picture is of Gianni and Kevin Frandsen. The folks at LPCH were kind enough to track it down for us - I look a bit crazed, but its an awesome shot of the two of them.