Gianni is our pants on fire 6 yr old. In Nov 07 she was diagnosed with a supratentorial primitive neuroectodermal tumor (sPNET), a highly malignant, rare brain tumor. Dr. Nalin Gupta (UCSF) performed surgery to completely remove the tumor. She completed 9 mos of high dose chemotherapy with Dr. Paul Fisher/Trish Murphy, NP at Stanford's LPCH (Palo Alto, CA) in Aug 08. Today (19 Nov 2011) she is 1,464 days (4 yrs, 3 days) NED!!! [who's counting...?] Thank you for your positive thoughts!
Tuesday, December 25, 2007
Merry Christmas!!
Tuesday (just happens to be Christmas) at Stanford . . . we were disappointed at first, but I think all is well. Grandma and Grandpa Walker came to visit, Gianni and Bruno got lots of presents from Santa [ ;-) ], and we all spent the morning and afternoon together. Bruno and Gianni had wagon races thru the halls of 2 North (that's our floor), the whole gang of us had ice cream and cookies in the cafeteria, and we all sat around and talked around the T.V. (except this year it was Shrek the Third, not football). We missed big sis, but since we still have to have our official Christmas dinner "whenever" we'll add her to the melee then.
Gianni won't be able to go home until her "counts are up"; that means her white blood cells start coming back. Typically that takes a few days so we are dug in for 3 to 4 more nights here at LPCH. She seems to be feeling better everyday, she played hard today and enjoyed all the excitement of Christmas.
The doctor's have all told us to not be alarmed, this type of response is not abnormal - in fact depending on how she reacts it could happen every cycle or not ever again . . .
She is sleeping nicely now, all tuckered out from a Christmas we are all happy to have shared, no matter where we are.
Peace to you all this Christmas and always.