Gianni is our pants on fire 6 yr old. In Nov 07 she was diagnosed with a supratentorial primitive neuroectodermal tumor (sPNET), a highly malignant, rare brain tumor. Dr. Nalin Gupta (UCSF) performed surgery to completely remove the tumor. She completed 9 mos of high dose chemotherapy with Dr. Paul Fisher/Trish Murphy, NP at Stanford's LPCH (Palo Alto, CA) in Aug 08. Today (19 Nov 2011) she is 1,464 days (4 yrs, 3 days) NED!!! [who's counting...?] Thank you for your positive thoughts!
Monday, September 22, 2008
Vote for Project Brain Child
Project Brain Child is an initiative of the Pediatric Low Grade Glioma Association.
Members Project is a program sponsored by American Express where cardmembers submit innovative ideas for projects that make a difference. Cardmembers vote on the projects, and the winning 5 projects will receive up to $1.5 million in funding from American Express.
The Pediatric Low Grade Glioma Association (PLGA) submitted project idea is to conduct a feasibility study to create a National Pediatric Genomic Brain Tumor Registry. The information collected in this registry would allow scientific researchers and medical experts to target specific genetic abnormalities with existing drugs most effectively.
The registry will embody all brain tumor types, not just low grade gliomas.
Project Brain Child was selected from over 1190 other projects to be in the top 25. As of today, September 22, they are in 9th place.
They need to be in 5th place or better to receive an award. You can vote up until Sept. 29. The winning projects will be announced Oct. 14.
Any American Express cardholder may vote. No donation is required to vote. If you don't have an American Express card, you can still help by spreading the word to your friends.
Brain tumors kill more children every year than all other diseases combined. Please help this effort.
More information:
* Project BRAIN CHILD information from PLGA
* Project BRAIN CHILD information on American Express Members Project site
* How to promote Project BRAIN CHILD on your site
So please consider taking two minutes of your time to vote for this worthy project.
* Thank you Steven's mom for sharing this valuable opportunity.